Offering aggregate results to participants in genomic research: opportunities and challenges
نویسندگان
چکیده
منابع مشابه
Waste to Energy: Challenges and Opportunities in Iran
Introduction: Countries around the world are looking for an appropriate, stable, and affordable replacement for the natural energies. Therefore, the waste is considered as an available resource to produce energy, which by controlling, its effects on the environment could be minimized. Materials and Methods: To conduct this review article, the scientific data related to the topic were gathered ...
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As more research studies incorporate next-generation sequencing (including whole-genome or whole-exome sequencing), investigators and institutional review boards face difficult questions regarding which genomic results to return to research participants and how. An American College of Medical Genetics and Genomics 2013 policy paper suggesting that pathogenic mutations in 56 specified genes shou...
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Returning research results to participants is recognised as an obligation that researchers should always try to fulfil. But can we ascribe the same obligation to researchers who conduct genomics research producing only aggregated findings? And what about genomics research conducted in developing countries? This paper considers Beskow's et al. argument that aggregated findings should also be ret...
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ژورنال
عنوان ژورنال: Genetics in Medicine
سال: 2012
ISSN: 1098-3600,1530-0366
DOI: 10.1038/gim.2011.62